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July 01, 2008

Highlights from the American Headache Society Annual Conference

50thlogoAHSLast week the American Headache Society held its 50th annual conference in Boston.  You may have read other news of the proceedings and the many new discoveries, inventions, understandings, and treatment options that were presented at the conference.  Lead expert Teri Robert of My Migraine Connection and Migraine blogger Eileen of My Life with Migraine attended the conference and will be posting a lot of information in the weeks to come.  If I may relay some tidbits second-hand, I was inspired to hear of their experiences in a collegial atmosphere where a number of dedicated medical professionals and advocates are working and sharing ideas to help bring us relief from this life-stealing disease.   I wish I could have gone along, but first things first.  I need to get my own migraines under better control before attending conferences, which have always tended to trigger me.  Though I suppose there might be no better place to be with a migraine!

The conference will provide material for many posts, both here and all around the Migraine blogosphere.  I'm going to share a couple of highlights that I am particularly interested in, and we'll touch on more of the new information as I have a chance to digest it.NeuralieveTMSdevice

One new device which looks promising is the transcranial magnetic stimulation, or TMS, device.  Tested for use by those suffering from Migraine with Aura, the TMS device is held at the base of the skull at the first sign of aura (visual and sensory disturbances experienced by about 20% of migraineurs).  You push a button to deliver two short magnetic field pulses to the brain.  Apparently these pulses scramble and abort the abnormal electrical activity which takes place in the brain during a Migraine attack.  The basic black and white model looks good for this raven-haired lady; maybe they'll come out with some more colors soon!  But seriously, this is a great alternative, since everyone can't use triptans, and even if you can, triptans knock you out of action for a while. 

Neurons_in_the_brain New research was presented about Why Pain Becomes Chronic.  New understandings of how pain becomes chronic can help headache specialists develop new therapies which can help sufferers with Chronic Daily Headache.  One of the new understandings involves the role of glial cells in the brain, which agitate neurons, increasing pain signals to the brain.  Use of opiates appears to activate glial cells, so can contribute to the development of chronic pain.  Research was also presented indicating that expectation of pain affects its severity, that in the case of chronic pain, the nervous system "over-reacts" but that this overreaction is physiological, not psychological.  A very important distinction - biological changes have been observed in the nerves themselves.  In other words, the pain is "all in our heads," in physiologic structures in the brain, not "all in our heads" in any psychosomatic sense.  I must say I feel vindicated - read my post It's All in your Head on the difference between what's in our heads physiologically and the old psychosomatic accusation we are so often subjected to.   

Yet another piece I am particularly interested in deals with Migraine in women and the role of hormones and the menstrual cycle.  More on that when I know more!

Overall, the good news is, there are good people out there looking out for us, working hard to find ways to treat this disease.

- Megan Oltman

                         Neurons image courtesy of Rebecca Radcliff.

June 27, 2008

Coping with Migraine: Claims of a "Cure"

I was recently presented with a dilemma here on Free my Brain. I want to encourage dialog and exchange of ideas, but I don't intend to provide an open marketplace for sale of migraine "cures."  (Though I will gladly support and even promote helpful products and services.)  Migraine is a complex, genetically based, neurological disease.  The frequency and severity of migraines vary enormously from person to person; so do the number and complexity of triggers and other contributing factors.  What we know now is that this is a neurological disorder, a differently ordered nervous system, if you will, which has existed throughout human history.  Like many congenital conditions, there may have been a valid evolutionary reason for this mutation at one point.  Maybe migraineurs were the human barometers, predicting disastrous weather changes for primitive societies.  I had fun speculating on the evolutionary basis of migraine in the post Our Ancestress: A Fable.

Anniversary Flowers I have heard from many people who have done just one thing and their migraines have gone away.  To them I can only say mazel tov!   (Congratulations!)  Here is a bouquet of flowers to celebrate!   For some it is eliminating just one trigger.  For others it is a particular nutritional supplement, a practice of meditation, regular exercise, a medication, a surgery, pregnancy, menopause, a life or lifestyle change.   I don't know if there are statistics on how many migraineurs find relief from just one thing.  I do know there are large numbers of us out here who need to find a combination of factors to manage and control our migraines.  Here is a bouquet of flowers to console us!  There is no "cure" for a genetically based neurological condition, any more than there is a "cure" for my red hair and green eyes.   (Well, another 15 - 20 years may pretty well eliminate the red hair.)

A great place for some very basic facts and information about Migraine is the recent quiz at My Migraine Connection: Dispelling Migraine Myths.   The two books on migraine featured in the left side-bar on this page are both great resources for learning about migraine and how to manage it.  There is much we can do.  For most of us, we can reduce our migraines significantly.  You have probably heard me say before that I have reduced my own migraine frequency by about 50% through use of abortive medications, supplements, trigger avoidance, relaxation and meditation, and lifestyle changes.

Someone submitted a comment to one of my posts stating that 1) Migraine isn't a disease; 2) there is a cure for Migraine "within us;" 3) he had over 20 years of migraines which are now gone; and 4) you can "retrain" yourself so you have no more migraines; he then went on to promote his methods.  I am genuinely happy for the commenter that his migraines are gone.  I am certainly curious about his methods, and glad that he wants to help others.  I don't mean to suggest he had any but the best motives.  But I am wary of anyone's claim to have a cure.  After some deliberation, I decided not to publish the comment and link.  

There are two ways to look at "retraining."  A nervous system which can be easily triggered into a Migraine attack can be viewed as an over-excitable or hyper-reactive nervous system.  Regular practice of meditation and relaxation can help us reduce the excitability of our nervous systems.  Note that this is not a "cure;" it is a supportive exercise or practice which can strengthen our system's ability to resist triggers.  You could call this "retraining."

But there is another view of retraining which comes from an idea that Migraine disease is psychologically generated.  It is not.  It is a real, physical condition.  It is no more psychological than epilepsy or scoliosis.  I view with rage books like Louise Hay's "You Can Heal Your Life" which suggest that right thinking can solve all our medical problems.  She suggests that "Migraine headaches are created by people who want to be perfect and who create a lot of pressure on themselves. A lot of suppressed anger is involved..."  Hammer

And so, if we work like crazy in therapy, meditate, recite mantras and do whatever highly subjective steps Hay seems to think will enable us to let go of the anger and pressure, if we do all that and we still have Migraines, then what?  We failed?  It's like telling someone the devil is causing their Migraines and they just have to really believe in God.  "I do believe!"  "If you really believed the devil would leave you and your Migraines would be gone!"  "But I really do believe..."  It's just a very sneaky way of blaming the victim!

I wish we could do a scientific study of people who want to be perfect and who put pressure on themselves.  In the first place I bet you that's at least 75% of the population.  And I bet you dollars to donuts that 12% of all the perfectionists would turn out to have Migraine disease.  And I bet that 12% of all the non-perfectionists would have Migraine disease too.  What's the incidence of Migraine disease in the general population?  12%!  I think you get my point.

I have been told that if I only distinguished the beliefs from my past that were making me have Migraines, they would disappear.  I will admit I tried to do that.  Like anyone else, I have a past and beliefs were formed in it!  Some of those beliefs are limiting to me.  In a life of nearly half a century, with plenty of self-help, support groups, personal development courses, and therapy, I think I've managed to identify most of those beliefs.  So why am I not cured of Migraines?  Is it my fault?  Or, wait, could it be that I have a genetically based, incurable neurological condition?  Hmmm...  Which is the more logical conclusion?  And which is more empowering? 

For me, the answer is clear.  I am 49, a woman, 5'2", a redhead, a migraineur.  These are facts.  I get choices about what I do with those facts.  I am choosing to vigorously pursue better and better Migraine management.  I am not wasting my mental or emotional energy on "cures."  Or at least I won't, once I'm done with this rant!

- Megan Oltman            

Curing is good for meats, cheeses, wines, paints... Maybe our heads don't need it?


                         Hammer image courtesy of Darren Hester

March 13, 2008

Please support help for our heads!

Here is the text of a letter sent Tuesday of this week to all of us on the AHDA (Alliance for Headache Disorders Advocacy) mailing list.  The time is now to contact your congressperson and urge him/her to support more research funding for headache disorders.  The ADHA link below makes it very easy to do.  Please help NOW.

Dear AHDA advocates -

Well, the key moment has arrived for you to contact your Member of the US House of Representatives to take action for increasing NIH research for headache disorders.

A Dear Colleague letter was sent yesterday by Representatives Peter Welch and James Moran to all House offices, urging all Members of the House to co-sign a letter to Representatives David Obey and James Walsh. The Obey/Walsh letter requests inclusion of language that supports headache research to be appended to the FY09 appropriations bill for NIH. (For details, see the letter and attachments at the AHDA site.)

The more Representatives that co-sign the Obey/Walsh letter, the greater are the chances that the language will be included. The Obey/Walsh letter must be submitted with signatures by 3/19. This unfortunate deadline was a late-breaking surprise for us, so we have little more than a week to get as many signatures as possible. Please go to the AHDA website as soon as possible to contact your Representative and urge her/him to co-sign the Obey/Walsh letter now.

http://www.allianceforheadacheadvocacy.org/

Blessings upon your heads!
- Megan Oltman

That disclaimer thing...

  • Remember: nothing we do here is medical advice or treatment or is a substitute for medical advice or treatment. Get competent medical advice to learn more about your migraines, possible treatments and risks.

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